Tag Archives: VCFS

She is reading words!

So, I fell off the face of the earth again for a while. Sorry. We had holidays, illnesses, a surprise get away for my anniversary with my amazing hubby and we have…..reading! Yep, we are doing it. My girl is … Continue reading

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22Q: What This Mom Wants You to Know

In lots of places all over the world this past week it was VCFS awareness week, also known as 22Q11 Deletion Syndrome. This is the very same syndrome Little Miss has. I am not the mom that is out there … Continue reading

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Research, Plan, Research, Plan, Question Myself, Plan

I had a small meltdown a few weeks ago. I’m blaming it on lack of coffee, or more specifically the creamer that goes in the coffee. Now that that is  done I am ready to dive back in. This past few … Continue reading

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A Detour: A Rare Disease

Today, in honor of Rare Disease Awareness Day we are taking a detour from the chicken hatchery to highlight the syndrome that affects the youngest in our family, Little Miss (4 1/2 years old), 22q11 Deletion Syndrome.  The funny thing is … Continue reading

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A Simple Stomach Flu (Feeding Tube Awareness Feb. 10-17)

A simple stomach flu. Well, not just a simple stomach flu. A simple stomach flu for my sweet girl with 22q11 deletion syndrome who has always struggled with failure to thrive due to feeding issues and oral aversion. That is … Continue reading

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