Tag Archives: 22q11 deletion syndrome

Shame on Mama!

My heart melted this morning. Little Miss was at the table coloring while everyone else was getting ready for church. Yet again she is sick and is having to stay home. She was drawing a really cute picture of people … Continue reading

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Our Gift

Tomorrow is Apraxia Awareness Day. I don’t need to be made aware. We are very aware in our house. Apraxia is one of the many “gifts” Little Miss has been given. It keeps her from being able to form words … Continue reading

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We Have Cake & Will Eat it Too!

It has been a busy few weeks! Schooling six kids is WORK! I feel like we are getting in a groove now and things are moving along. Not sure where they are going always but they are going. Little Miss … Continue reading

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22Q: What This Mom Wants You to Know

In lots of places all over the world this past week it was VCFS awareness week, also known as 22Q11 Deletion Syndrome. This is the very same syndrome Little Miss has. I am not the mom that is out there … Continue reading

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Research, Plan, Research, Plan, Question Myself, Plan

I had a small meltdown a few weeks ago. I’m blaming it on lack of coffee, or more specifically the creamer that goes in the coffee. Now that that is  done I am ready to dive back in. This past few … Continue reading

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Teaching My Non-Verbal Child to Read: First Thing First

Today we had Little Miss’s non-verbal cognitive testing done. I figured before we start officially schooling her we needed to have a good grasp on her strengths and weaknesses. I was not sure what all we would learn but if … Continue reading

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A Detour: A Rare Disease

Today, in honor of Rare Disease Awareness Day we are taking a detour from the chicken hatchery to highlight the syndrome that affects the youngest in our family, Little Miss (4 1/2 years old), 22q11 Deletion Syndrome.  The funny thing is … Continue reading

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